journaling some thoughts

This weekend is my "free" weekend. Normally every other weekend I am sick from chemo and every other weekend I am working. Since I have finished my four tough rounds of chemo, I will be switching to a new chemo drug. I decided then to switch treatment days from Thursday to Tuesday. So, I should’ve had a treatment yesterday and I would be looking at a chemo sicky weekend. But now I get to wait until Tuesday. So now I have Friday, Saturday and Sunday off and I feel great. I have my strength back and my appetite. I plan on living it up this weekend.

John started farming tonight. He is plowing with the big, big tractor. It has 12 tires on it. I know I posted a picture of it on here before. I don’t know how to post pictures on open diary even though all my pictures are on photo bucket.

My mom came home for my third round of chemo. She had made me really upset because she was in denial about my cancer and it’s severity. She kept saying things like "you never know, you might not get very sick." and " you might not lose your hair" It was hard for her to be here over the holidays and deal with my feelings and try to deal with her at the same time. Mom and dad both came home when I first got my diagnosis and they stayed a month while I was having surgeries and such. After that they left. I was pretty bitter and resented them for leaving me while I am fighting for my life. I couldn’t imagine leaving my daughter if she was going through this.

So, mom decided she was going to fly home a week and help me with the kids and house while I had a chemo treatment. It was a surprise. I didn’t know she was coming. She came on a Wednesday night and Thursday morning we had to get up and go get chemo. She watched me be sick on the couch. She experienced my pain. She wiped my tears. She had a hard time leaving me after a week. I think she’s not in denial now.

Now they have left AZ and are headed to Missourri. They will be state park campground hosts for a month there and then come home. At least they will only be a 8 hour drive away.

My sisters and brothers have been pretty good to me throughout all this. Although, I have to tell you that the "news" wears off and people just go on about their lives. I mean at first I got cards, flowers, meals and visits from people. Especially after my surgeries. Now I am in the middle of my chemo and people are just going about their own business. People get busy and life goes on. I will be taking chemo treatments until June 16th. It’s going to be a long journey.

There’s so much about this journey that I need to write in here. So many thoughts going through my head. So many things have changed. I am going to try to write more often and get some of this stuff down.

Thanks for all your wonderful notes. I have missed OD and my friends here.

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Hi Susan. I can actually understand what you mean about people going about their lives as if your cancer doesn’t mean anything, anymore. You have went through a long journey, and still are. I haven’t forgotten you. It’s hard to read this about you. I hate, absolutely hate that you are having to deal with this. I’ve said a few prayers and will continue to do so. Don’t worry about calling me back. Ijust wanted to say hi and check on how you were doing. Keep hanging on to God, because he is the ONLY one who will never let you down. :))

I keep you in my daily prayers, and I am glad you got this week end off. It’s so wonderful to see your entry and your NOTE to me!!!!! :*)) Thank you. I hope your family rallies back around you, supporting you. I really sincerely do. Take good care of you, and I send you a big, gentle hugzzz. love ya, *S*, Lois

March 28, 2009

I think of you often, Susan, and pray for you. I think one of the things with illness is that when it doesn’t affect someone’s everyday lives (like your friends, I mean), it just kind of…fades some. It’s a sad truth. Keep your chin up, girl – we’re thinking of you! 😉

March 28, 2009

I just said an extra prayer for you. Thanks for your note. You’re too kind!

March 28, 2009

I have really missed hearing from you. Keeping up with your daily/weekly life has been so interesting to me. We’ve kept up with each other for a long time and I feel like you are family. I’m sorry about your mom’s attitude. I feel for both of you. I hope she just cherishes every day you have together. You are so strong and such an inspiration!

March 28, 2009

That is awesome that you have a weekend off. I hope it gives you a lift when you need it most to just maybe feel a little more normal for a few days. I look forward to your updates.

March 29, 2009

I think of you everyday and often wonder how you are doing.. I can tell you if I was close I wouldnt be able to”just go about my daily life” and not have you be a part of it. I hope you got to enjoy a wonderful sick free weekend. yes, I have a new job and I love it. I am an instructor in training at our local therapeutic ridding center and I teach disable children and adults to ride.I have found my calling…you are in my loving thoufghts and prayers my friend. It was so good to hear from you!(((Hugs)))