aaaaakkkkk. Times, oh, a bazillion.
My brother called me last night. My brother does not often call me, but I don’t think any of us are really big phoners. I hate calling people and suspect I may harbor some sort of minor phobia about it. I can’t recall my brother ever calling me until a few years ago when our mother landed in the hospital due to a blood clot in her lung. My father never used to call me either – Mama was always the Offical Phoner, and I still remember the sheer terror I felt waaaaay back ages ago, over ten years ago because we were in our last house, when I answered the phone and it was Daddy calling, and he was just making all this casual chit-chat and the whole time I was internally screaming, WHY ARE YOU CALLING!!! WHAT’S HAPPENED TO MAMA!!!!! Turned out he just called because he knew we were looking around for a VW Bug and someone he knew had one for sale. But seriously, my heart basically stopped for like five minutes till he finally got around to telling me why he was calling.
But that’s really not my point at all. Daddy calls me all the time now, since Mama is no longer able to be the Official Family Phoner. That’s not my point either. My brother calling was my point, and even that’s not as weird as it used to be. In the last couple of years I’ve probably talked to my brother on the phone more total minutes than we’ve talked on the phone our entire lives previously.
Anyhow. He called because he was really about to go careening over the edge. And my brother is not an over-the-edge kind of guy. There were several things driving him over the edge last night. One being that Daddy did get to come home yesterday, at long last. Which is great, of course. What isn’t so great is that he came home with bandaging that has to be done, and although we all thought that the VA was sending a Home Health Care nurse out daily to change the bandages, J had just discovered that the Home Health Care Nurse was actually only coming out to show someone ELSE how to change the bandages. And it’s not JUST changing bandages, which even I could probably manage with a minimum of turning white and passing out. As long as I could do it without really looking. Kind of like I watch House without really looking. It’s also cleaning the two big deep quarter-sized holes and packing them with gauze. And it’s twice a day.
"WHAT??!!?!???" I shrieked.
"I CAN’T DO THAT!!!!" he shrieked. "I CAN’T DO THAT, I’LL PASS OUT!!!! I CAN’T EVEN LOOK AT IT!!!!!"
"OHMYGOD I CAN’T DO THAT EITHER!!! I’LL PASS OUT!!!! I MAY THROW UP JUST THINKING ABOUT IT!!!!!" I shrieked right back. Yes, we are both very very very squeamish. I still clearly remember my brother playing with a mini-stapler in church, poking a hole in his finger, seeing blood, and collapsing in the floor. And I very nearly joined him. And we were teenagers. Neither of us can handle blood, bodily fluids, or anything the slightest bit icky. At ALL.
So we shrieked back and forth awhile in horror and disbelief. Then we calmed down and tried discussing it like rational adults. He said the SIL may be able to handle it. She’s not squeamish, and actually works in a medical setting. Her last job was admitting people to the emergency room at the local hospital, so she’s seen her share of blood and bodily fluids. And one of his kids, Goth Chick, thinks she can do it. But we were both horrified that the VA would send someone home who has open gaping quarter sized wounds that need to have gauze packed into them daily. We’ll KILL him!!! We said. He’ll end up getting a horrible infection and dying because we are, NEWS FLASH!!! NOT trained medical professionals who know how to pack gauze into open wounds without filling it with germs and without passing out ourselves!!!!
So I said I’d call around today and see why in the HELL they are making US do that, and find out what exactly we’d have to do to get the Home Health Care people to do the Icky Bandage Changing. Because, seriously, if I could handle stuff like that I’d have gone into nursing myself and be making way more money than I am checking out graduating seniors, that’s for sure.
Today I get on the phone between calls from panicky non-graduating seniors and their mommies and their daddies, and I get the nurse practitioner at the VA. Who tells me that no, we can’t get someone else to it, we’ll just have to do it ourselves because that’s what families do and we are going to have to just buck up and stop being such great big wimps, because they send people home with WAY worse wounds than that. She said it a little more nicely of course. And said it’s a "dry" wound and it doesn’t have to be kept sterile – as in you don’t have to use sterile gloves and stuff – so although there’s a chance of infection, as with any wound, it’s not as dire as we thought. And she gave me the number for the home health people (they are called Tarheel Home Health which seems like a really odd name to me even though we are in NC, and I keep thinking it’s "Tarwheels" which was the name of our local skating rink when I was a kid) and they told me the nurse will actually be visiting a bunch of times – fifteen all together – and he’ll have a bath person and a physical therapist visiting too. So we aren’t being abandoned and left to our own inadequate, non-medical, overly-squeamish devices.
Tonight J called again and said the SIL had changed the bandage, and it wasn’t THAT bad.
The really scary thing is that she’s going away on Friday for a weekend with her friends that she’s been planning FOREVER. And I may have to do it myself Saturday. Unless the niece can do it. When I realized that, I nearly fainted on the spot. My best friend Kim the Nurse said she’d come over Sunday and check it out for us, but she’s working till then in Johnson City Tennessee and can’t come by.
The other really bad thing is that my mother was MUCH worse after Daddy came home. Which makes no sense at all. But she was being very mean to him and mean to the SIL and the nieces and telling them that she would do what she wanted and she didn’t have to listen to them and she was mad because everyone was ignoring her when the nurse was there giving the bandage-changing demonstration. This is so unlike my mother that it is pretty much beyond comprehension. But her doctor said that’s what Altzheimer’s patients do- become like children. Bratty children, apparently. J was beside himself about that too, and he’s really patient with her. But having her be mean to the SIL and the niece after all they’ve done is more than he can take. Even though we all know she can’t help it. Last night we were talking about nursing homes. It’s beyond horrible to have to even consider that. But if Daddy can’t rest and have some peace, he won’t get well.
Today, though, she was better. So maybe we can just check them out and see about getting her on a list. If they have lists. And talk to him about Assisted Living places, which might be an option too since he’s determined to take care of her as long as he can.
All in all, it’s been a pretty darned depressing few days.
And I’m behind reading, I’m behind noting, we’re crazy busy at work, and Baker B and I are going back to Asheville Friday night.
So… waaaaaaaaaaaaaaaaahhhhhh!!!!!
So … your brother isn’t an emergency room nurse, then.
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Having to change dressings is getting way too personal with one’s parent me thinks. in my mid twenties I was living with my poor big sister who spent so much time on hospitals when she was little that even a wiff of medical stuff makes her desperately want to bolt and I got sent home from what I thought would be a routine doctor visit with big messy wounds that had to be dressed twice a day ina place where I couldn’t reach. I still feel guilty about that. We worked it out and we are still speaking. 🙂
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Am glad Uncle W is home. It’s not right that the nurse practicioner seems to be piling on the guilt. “That’s what families do???” Not mine. I’m so sorry about your mom’s behavior. That rotten disease just does that to people, making them behave in a totally unrecognizable way.
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When my father was ready to come home from his colon cancer surgery, the hospital decided that I should be trained on his bandage and wound care (because no one else in my family would even consider it). To say I was reluctant is putting it mildly, but I “bucked up” and about 30 seconds into my lesson, I fainted. When I woke up, they were training my mother, whose job it should’ve been anyway, right? In sickness and health and all that crap…
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i so understand. all of it. and the frustration. and the discovery of this horrible attitude that it is the family’s responsibility. like i said to the home health nurse “you are useless. get off my property. go and come back no more”
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In Canada, we have medical care that is free. This means that you are not allowed to spend very much time in any hospital. They send you home like that and similarly, they expect family to take care of things. I know that I could do it because it doesn’t bother me for some reason…other than the part where the other person is hurt. People hurting makes me more sick to my stomach. If I can help, it is fine. Bottom line, it is TERRIBLE that people cannot recover in hospitals like the old days. Hello! It is the reason that they were created! As for your mum, she sounds like she is moving into another stage of her condition. I think that looking into care situations cannot really be soon enough. Better to cancel than have to wait longer than you need to when it gets bad.
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RYN: well we do use Willow to dust shelves with – not intentionally you understand – he just does it all by himself! And regularly sweeps to its death a plant I have on the landing upstairs by innocently walking past it – I’m surprised there’s actually any earth left in the pot to be honest. And you’re right – Judge Judy is a dog person! As I understand it anyhow. But she regularly has a disapproving scowl on her face anyway so I’m not surprised she’s not happy with our sitting room activities ……. She’s our teatime telly watching when Nikki’s on a 10-6 shift – I’m just getting in around that time as well and JJ is on at 6.05 so perfect timing – shallow people that we are.
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God – nightmare city! I can’t believe they would send someone home after that sort of surgery with wounds which need packing and expect family to do it – especially without checking first – that’s mad! I hope you don’t end up having to do it on Saturday – maybe it could be left until Sunday then Kim could do the honours? You poor soul – you must be going out of your mind with the worry of allthis – I think a nursing home may be the next step right enough because it sounds like she’s moving on to other stages now although it could just have been the reaction of your Dad coming home maybe? But you’re right – he’s not going to recover well if he has to cope with that as well and then there’s the safety aspect too – Alzeiheimer’s can be dangerous in that people do all sorts of things they wouldn’t normally consider doing. My aunt used to wander out in the middle of the night and stand at the bus stop thinking it was morning and she was going to church!
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I wonder what in the world they would do with a patient who lived alone and didn’t have family to come over and change the wound dressing? This reminds me of my wound after abdominal surgery when the stitches broke, and, don’t faint, it was 10 inches long, 5 inches wide and 2 inches deep. It took months to heal. My husband at the time changed the dressing inbetween visits from the home care nurse.
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I really feel for you right now. Aging parents are a real problem these days. What do you do when you live away from your parents or one of them is widowed and has no one there to take care of them? It’s just so sad! And for the kids, well, it’s a bazillion times worse. It’s just got to be so tough, scary, anxious, and otherwise awful for you right now.
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Holy Mother of HealthCare, I can’t believe your father doesn’t have suitable arrangements for his discharge and follow-up care! Wishing you and the family much strength and patience.
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if heard of this mor often than not where they send people home with open wounds and family has to learn how to do what it takes to bandage the wound. a woman here at work had a sarcoma. when they finally removed the tumor it not only weighed 10 lbs, it left a very large hole in the back of her thigh. the wound was not dry either and required changing, packing and some kind of machine that kept the wound draining so it could heal. it took a few months until she could get off the machine. doesn’t that story make you feel very fortunate now? please know that i too don’t have the wheretofore to deal with matters such as these. i’m a sypathetic puker, and i realized early on that nursing would not be my field.
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that was supposed to be ‘i’ve heard of this more often than not’.
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Luckily, my daughter isn’t squeemish at all and has been a huge help with my dressings, etc. Hope all turns out well for you. I’ll try to catch up soon.
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RYN: Oh my God – that’s awful! In my aunt’s case, she’d lived in her neighbourhood for years and years so was pretty well known & when anyone saw her outside they would go & ask her where she was going then take her home. One of her neighbours a couple of doors down used to look out for her and pop in almost every day to make sure she was alright. It was a worrying time though especially in that twilight zone where officials are not sure if they ARE actually a danger or starting down the Alzheimer road and try to keep them in their own home as long as poss which is great & everything but not when you’re permanently worried about what they’re going to do next. It took a very bad fall when she fell out of bed, lay all night and was bruised all down one side then went into hospital, was in for ages and FINALLY they decided she couldn’t look after herself so we got her into a home. It’s sad to do but it was such a relief to know she was safe and it wasn’t far from my house so I could visit often. Not that she knew who I was half the time!!
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Me and my brother are the exact opposite of you and your brother. Mine likes to watch surgeries being done and my favorite show is Dr G Medical Examiner.
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If your mom is not the kind of person who uses curse words, be prepared. Altzheimer’s will more than likely cause her to say things that you would NEVER expect her to say. When I worked on the skilled unit at a nursing home in Kings Mtn I discovered that they latch on to words they hear their neighbors in the unit say. Shit-ass was their favorite. Everyone was a shitass. I’m sorry.
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