Apologies for Long Rambly Post

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I think it’s time to share something with you.  The fact that I’ve taken almost 3 weeks to finally get round to finishing this entry speaks for itself.

For over 35 years I’ve battled – on and off – with a codeine addiction in the form of over the counter painkillers originally taken for period pain at a time when I would have had no clue what the words ‘addiction’ ‘junkie’, ‘cold turkey’ or any other similar term meant.

The tablets I took (Feminax) came in a metal tube of ten and were ginormous – or at least they were to me who was used to nothing more than tiny Aspirin or Beechams powders being the sole medicinal content of our bathroom cabinet at home!  I therefore took one at a time not imagining for a second you could take two and I DO have clear memories of reading the leaflet one day and being amazed that the normal dose was two at a time.  Why I was reading the leaflet remains a mystery but whatever the reason I presume I must have then taken two at some point and got some sort of mild buzz when I did.

There’s no memory of that but there is evidence in my diary of 1977 that I was taking them occasionally to lift low mood or when I was really struggling with my weight or had overeaten.  By then I had come down to Aberdeen to College so had been plunged into independent life at aged 17. Just. Which is really quite young when I think of it – certainly it would have been in 1975 – but even nowadays I think that’s quite a lot to contend with at that age.

Six months later Dad died suddenly and when I finished my college course I came back up to Inverness to live with Mam for a year.  That wasn’t really my choice but I was finding it hard to find a permanent job and somewhere to live in Aberdeen and I think it was seen as convenient because it would be company for her now that she was on her own.  Poor Mam – I don’t think a teenage daughter is the best person to live with when you’re newly grieving for your recently lost life partner, especially when that teenage daughter has just had a taste of living away from home!

It was a difficult year.

Anyway I plodded on and there is plenty evidence to show I was constantly battling with low mood, intense sugar cravings and very low self-esteem which I think was in part to do with raging PMS – not something of which there was so much awareness in those days.  I was also well ensconced in the binge/diet syndrome at that time which would have caused its own problems and certainly not helped the PMS and I was probably going through a grieving process for Dad as well but didn’t realise it.  I can only imagine that I was starting to realise the tablets would help me cope with all of that.

Thankfully they hadn’t become a daily event at that stage.  I’m not sure when that actually happened but it’s obvious they were being used outwith period times and I think they had, in effect, become my own personal anti-depressant.

When I became pregnant with Nikki I was naturally enough seriously worried about them and told the doctor.  He made light of it and said not to worry and try to have plain paracetamol instead if need be.  He was a bit of a joker although a really nice guy and I clearly remember him saying “just stick one in each ear instead” as I left the room and me laughing but knowing inside this was wrong and he wasn’t taking it seriously enough.

There was no internet in your living room in those days so I couldn’t do any research of my own but I made a gargantuan effort not to take any for the next 9 months which was no mean feat given that I felt sick for the whole pregnancy.

Because the underlying reason hadn’t been dealt with and I now had the added stress of a young baby and an alcoholic husband I was happy to resume taking them when needed and eventually I went back to a different doctor to try and get help.  He put me on pure liquid codeine the plan being to wean me off by reducing the amount each time but I couldn’t even stomach the first day!  That stuff is absolutely disgusting and it felt like I’d gone cold turkey – I poured it down the sink and was too ashamed to face the doctor but, realising that wasn’t going to help anything, I went back to fess up.  He concluded it was probably more of a psychological addiction and said we’d be better to try tapering the tablets themselves.

I had much more success with this and managed to get down to half a tablet a day but taking that final step was proving hard.  It didn’t help that I wasn’t feeling any better at all and one night, after going to an evening class where I struggled to concentrate through a monster headache, I came home and tried to talk to Boyd.  I couldn’t think properly, my head was pounding away, my speech was all garbled and he said he couldn’t make out what I was saying.  I couldn’t stand it any longer and took 2 tablets finally getting relief.

Back to Square One.

Of course it didn’t need to be – I could have started again the next day but to me it was a massive failure and there was no incentive to repeat the experience so it wasn’t long before I was back up to the same dose.

Thankfully, by some miracle, I never went down the road of taking more to get the same effect because, purely by chance, I discovered that certain foods taken with the tablets enhanced their effect.  So although that took care of the tolerance issue, it screwed up my diet with the result I was eating a very rigid, unbalanced range of foods very much lacking in proper nutrition.  Had you said at the time that I was well on the way to developing an eating disorder I would have said what a load of complete crap but with the wisdom of hindsight I can see that that’s exactly what was happening.

4 years ago when the menopause came along, I went into something called the perimenopause which just about finished me off but before all the symptoms were diagnosed, I instantly thought the whole addiction thing had caught up with me and I’d done some serious damage to something inside.

Panicking I went back to the doctor and asked for a referral to the local Substance Misuse Unit.  Had I been on hard drugs I would have received all sorts of support and although the same sort of support was available to me it just wasn’t appropriate for an over the counter addiction.  I had blood tests done which came back okay so they concluded that my body was tolerating the dose I was on and not to worry too much but not to increase it any further.  End of story.

I was shocked.

But the whole thing had scared me enough to start tapering on my own and also to realise how much my diet was involved in this – I could see that I couldn’t tackle one without tackling the other.  Back to the doc again I asked for a referral to the Eating Disorders Clinic and in September last year I started reducing the tablets from 9 daily (8 mgs of codeine in each) by one tablet a month then by half a tablet a month.

The longest, slowest taper ever!

I also found an excellent support website with lots of brilliant advice, helpful information and most of all, constant encouragement with no judging and it’s there that I log onto every morning and night to see me through this.

I’m now down to 4 tablets a day but I haven’t managed to get through a month yet without a relapse usually due to a monster migraine which nothing will touch apart from codeine.  Codeine causes rebound headaches which can be pretty severe so basically the cure is probably causing the symptom but hopefully these will gradually decrease in time.  So far this month I haven’t relapsed so my aim is to get to the 19th when my next drop is and celebrate one whole month of sticking to the taper for once!  At least I haven’t let any of the relapses stop me from climbing straight back on that wagon so that’s something.

The Eating Disorders Clinic sessions worked while I was there but it’s all gone to ratchet again since I had to stop in February so I’ve asked the doc for another referral.  While I was there she also suggested trying sertraline, an anti-depressant which has some success with opiate addiction and also OCD. I absolutely HATE the side effects which come with anti-depressants and haven’t tolerated them well in the past so I’m in two minds as to what to do about this. I could have a hellish month but then feel much better in the long run or have a hellish month and find absolutely nothing’s changed which would depress me further and this whole thing is hard enough as it is – I’m not keen to add something else to the mix unless it’s going to have a positive effect. So although I know everyone reacts to drugs differently, if anybody’s got any experiences of it – positive or negative – I’d welcome them.

The website I log on to every day was instrumental in getting the addiction warnings put on medicine packets and initiating the speech you get (or should get) in pharmacies when you buy products with codeine in, asking if you take any other medicine and warning that usage should only be for 3 days maximum.  Of course that speech is useless when you’re already addicted although the first time a pharmacy assistant said it to me I nearly died, thinking they were on to me!

There are thousands upon thousands of people addicted to over the counter medicine and not enough support out there for it and the more I learn about codeine the more I’m horrified to know just how much it affects your brain, thinking, behaviour, life in general.  I could go on and on about it but this entry is long enough and you know me – can’t summarise anything to save my life ……

The thing that horrified me the most though was when reading through old diaries to see if there was any mention of taking the tablets for other reasons than period pain, I kept coming across exactly the same issues and misery then as exists today which seriously makes me wonder if I’ve had undiagnosed clinical depression all this time and I’ve just got very good at hiding it.

Who knows?  The fact remains I’m ashamed of it.  I’m guilty about it.  I’m horrified it’s gone on so long.  But at least I’m trying to do something about it now.  Better late than never.

I’ll post my progress in amongst other entries because I know those of you who have no experience of addiction won’t understand the hold it has and I don’t want it taking over my diary – I’ve written screeds of private entries in here trying to get my feelings down on paper in the hope it might purge stuff but I don’t know if it’s helped or not.

If you’ve got this far thank you for sticking with me – I just needed to get this out.

It’s been a long time coming.

Log in to write a note

My dear lamb. This is a lot to carry on your oown, let alone being a HUGE support to the little mother and the baby. I hope you can get some support to pull the threads together and maybe look again at what sort of diagnosis might fit and treat the whole you. WHat strength you have! I hope you can find a path that gets away from those NASTY-sounding headaches. To be frank, if osmeone had said when I had hormone-related headaches while menopausing that the dope was going to bring an addiction I might have just done Something Very Unwise and gone for them anyway. I’ve seen my mother get off Valiums with a lot of effort, though anger at my father wasn’t maybe the best fuel for her strength. I am lucky, my addictions are otherwise. Please remember how much you are cherished and look after your dear self.

May 12, 2013

I am sooooooooo proud of you for sharing this. It took much strength and courage. Codeine is by prescription only here in the States, It is OTC in Canada.

May 12, 2013

I am sorry you don’t live closer to me, I think I could help you.

Thank you so much for sharing this with us. I’m so sorry you’ve been battling this for so long. Sending hugs and love.

Well done *enormous hugs* I can very deeply empathize with so much of what you’ve said here but I’ve just woken up so am not very coherent lol….mostly I just want to say I am so proud – both for making this public and for your journey so far. You go girl 🙂 xx

May 12, 2013

As you know, I know quite a lot about opiate addiction. Some people think that it’s just all about heroiun, but there are opiates in so many O.T.C. medicines that people just don’t know about and it’s so easy to get addicted. One of my faves on here has crohn’s disease and didn’t realise that she was addicted to codeine until she ran out and was rolling around on the floor in withdrawal. She was

May 12, 2013

mortified, but really , addiction is nothing to be ashamed of! I hope you manage to get off the pills but don’t be disheartened if it takes a long time. Thanks for sharing with us!

I’m glad you’re doing something about it. So many of us are addicted to medications that are prescribed for us, much less over the counter. I hope you are successful in getting to feeling normal without medication, as much as you can. {{{huggs}}}

May 12, 2013

Nothing really to feel ashamed of or guilty. It’s a pity no one offered you a helping hand or that your doctor didn’t take your problems more serious. Trust yourself in taking small steps to change your habit. Online support does help, I’m a member of several fora to talk about my illness and the specific problems I have.

Oh lovely! Thank you so much for sharing this. You know that Ill be here when you need to write and have nothing but love for you! I am so sorry you’ve dealt with this for so long. <3

May 12, 2013

I’m proud of you for sharing this and for where you have got to in resolving it. I think it’s a far more common addiction than anyone thinks it is – yet family doctors don’t think we need help to cope with stopping them. And yes, I say we because I was also addicted to codeine, a much higher dose (I was taking 8 x 30/500 every day) – for pain relief from rheumatoid arthritis but also because I liked the feelings it gave me. I was so angry when I moved to the US and no one would prescribe them to me – and didn’t seem to understand the terrible withdrawal I went through pretty, much going cold turkey. So now, well I am in pain all the time – but no longer addicted.

Wow, thanks for sharing your story. May it be your first step on beating your addiction. We are here to support you. Too bad you didn’t get the help you asked for early on from your doctors.

May 13, 2013

*HUG* Proud of you for sharing. That’s maybe harder than dealing with the physical side of it.

May 13, 2013

ryn: After 55 years and millions of crossings, only one driver has been blown off that bridge. The odds against me being the second are astronomical. I’m glad you like the picture.

You are courageous for putting it all out here I would hope you feel no shame or guilt for there is none to have I wish you strength in continuing to help yourself If there’s any questions I can help with feel free And I’m good at listening too Xx

May 13, 2013

No opportunity to respond adequately here in Spain – but thanks for that entryu – and all the best

May 13, 2013

Thanks so much for this! I am trying to get up the courage to talk about my own addiction/dysfunction cycle here (different substances, same treadmill). You may have made it possible. My Nana was a codeine addict. She had chronic pain from a chimney falling on her in the quake. 30 years later, I was regularly sent out to get her “AP Codeines”. I don’t think you can get it over the counter here anymore. There is a good website called askapatient.com which I use to check out medicines. It consists of reports from people who have used the drugs on its effects/side-effects and their opinions. Hugs and congratulations for getting up the courage to write this.

May 13, 2013

part of the purging is putting it out there, and here. please don’t feel guilty, or any of that other stuff. i applaud you for writing about it, and grabbing the bull by the horns. if i was able to do it 26yrs ago, so can you. i support you 100%. proud of you, Marg!!!!!

RYN RMN: I think it’s really hard for anyone to give up any kind of addiction, especially one you’ve had as long as you’ve had. I gave up smoking when I turned 39 and it was the hardest thing I ever did. I do hope your journey in giving up the codeine is successful and that you continue to improve. My brother gave up drinking a few years ago. He didn’t feel as though he was alcoholic, but he didn’t like the person he became when he drank and as you noted, it affects your thinking, behavior, etc. He also saw a psychologist a few times (I didn’t ask why, but I think for ADHD too). So think of it as a journey. You’re tapering off and I think that’s the best way. And things will become more clear for you. {{{huggs}}}

May 13, 2013

You are brave to share this. I wish you every success in achieving your goal. I had codeine (60mg) for pain and it spaced me out but didn’t help the pain. RYN: It takes a couple of days for the body to go into conservation mode – metabolism slows and the body uses minimal protein for fuel. Starvation is when you have used up all your nutritional reserves and vital organs are used for fuel.

May 13, 2013

Well nourished people can fast for up to 6 weeks and have not got near starvation point. Some people fast longer but it is not recommended. The author of the book I mentioned fasted for 46 days – he’d had a knee injury and after a year it still had not healed and he couldn’t walk. By the end of his fast he was walking. He treats migraine headaches with fasting and diet change.

May 14, 2013

ryn: Thanks.

May 14, 2013

*gentle caring hug* And thank you for your kind note.

May 14, 2013

most people on this planet are addicted to something myself included. Good on you for giving you the freedom from the fear of guilt and shame. No one needs to carry that around especially when it is self inflicted. loving hugs to you

RYN: Oh gosh no, my cat doesn’t “go” in there — he goes in there to explore. Maybe to play with the spiders in the tub. I do find cat hair in there. It’s okay, he’s allowed the run of the house (he’s inside when I’m away). The only place I don’t want him is on top of my media center, and I don’t really care to have him close to my television either. Luckily, he is a good enough boy to stay away from those places, although sometimes he’ll get on the table the TV stands on and look wistfully at the media center (where I have my blu ray player, stereo receiver, and television receiver, as well as a bookcase speaker). I scold him and he scurries off.

Marg this is such a brave entry. You shouldn’t be ashamed. You’ve been seeking help over and over for years for something you became addicted to without realising it. And you are doing well. Done to just four – that’s very good. The husband of a former colleague was addicted to codeine but he was not prepared to tackle his addiction. Keep writing. I’m sure it helps even if it hasn’t ’emptied’ everything just yet.

Yes I know what a big step that is for you…still hella proud of you 🙂 RYN:…meh….trying to write it out but its not working. Its a year tomorrow since the last time Ian ‘went’ back to (his wife) and a year on Sunday since Chris assaulted me. I don’t feel any further forward.xx

May 18, 2013

It’s easy to be sucked into an addiction accidentally. There are specialists who help people with addiction…I don’t know why codeine should be considered any differently than any other drug when it comes to rehab options. Many people in northern Canada are addicted to oxycontin, which needs a prescription but can be bought on the street.

May 20, 2013

My goodness–what a secret to keep to yourself, and afterward…I hope you feel lighter, bringing this into the knowledge of others. Once for about 16 weeks I worked with addicted women who kept diaries–they lived, court-ordered, in a safe house. I took my university class students, taking a class in methods of journal writing, to the safehouse weekly. The students were very interested to seeas the class moved forward how much alike the women the at the safe house and the students from the university were. I wish you the best. You were very young when this started; that young girl inside would like to be forgiven, I’d imagine…she didn’t know the severity of her decision-making. I often want to scoop my 17 year old self up and just rock her and tell her it will be okay later on and end up well. I know you will end up well, too.

May 21, 2013

hugs. I hope this helps. write as much about it as you need. Thid is your diary.

Addiction is mental, physical, and emotional. Some would include spiritual. I found I could not deal with my addictions on my own. I needed the support of others who had walked the path before me. Best wishes to you!

May 22, 2013

I am SO glad you wrote about this — it’s shocking that something so addictive is over the counter. I don’t think we can get codeine-based medicine here without a prescription, but I know it’s beyond easy to keep getting prescriptions for addictive medication. When something makes you feel better, of course you keep using it. Especially when you’re that young. I would guess the very gradual way you’re weening yourself off of it is the best way- and like you said, if you stumble one day, just keep going the next. And I bet writing about it helps enormously – it certainly helps with everything else! I’ve never had addiction problems with drugs, but certainly have experienced it with other things. I think some of us just have more addictive personalities, and maybe that’s genetic. My dad is a long-recovered alcoholic, and I’ve always had issues with food. Food is my feel-better drug of choice. And I’ve always been very concerned about my own alcohol consumption, since of course that is a biggie as far as making everything seem much much happier, at least for awhile.

May 22, 2013

It’s funny — well, WEIRD and NOT GOOD — how OTC drugs are not taken seriously at all as far as addiction. You think if you can buy it at the grocery store, of course it’s perfectly safe to take. And then when it helps enormously of course you keep on taking it. I hope you will keep posting progress entries — I think it will help you, and many of us as well!

I used to take Tylenol 3 (i.e. with codeine) for headaches and menstrual pains. By some good fortune the headaches stopped, else I might still be taking codeine. I think I still have some tablets left. Brave of you to write about it,and to combat combat the dependence.